Today I went to the doctor. It was just to talk about the fluid I've had in my ears for 2 weeks. But he decided to take the opportunity to play "Twenty Questions".
"So, how's your pain?"
"It's worse than ever" I reply.
"What's changed lately?"
"Well, nothing really. I have hypermobile joint syndrome."
"Yes, I see that. But you would have known about that all your life, right?"
"No."
"Oh well. I wouldn't worry about it too much."
Really. I shouldn't worry about the severe & chronic pain I suffer every single day. About my pelvis & upper back subluxating at least once a day. Huh. Good to know. I wish I had known that when I was spending the last few days in tears scared I can't breed because my pelvis won't cope with pregnancy, that this condition is inherited & the drugs I am on are not conducive to baby-making.
"Well, I wouldn't if it didn't hurt so much", I say. "I'm really only here because my ears have been blocked for a fortnight."
"Yeah, well it says here benign hypermobile joint syndrome, see?"
You're an Arse. Don't you know the difference between hypermobile joints & benign hypermobile joint syndrome? One means you're a little bit more flexi than average. The other one stalks you like death. It changes the way you live your life. It's like the difference between CF & ME/CFS. It's the difference between a headache & migraine. A cold & pneumonia. Do they not teach you anything at school these days? You are an Arse & if I didn't need you & your prescription pad I would tell you that you are an Arse.
Maybe you can tell I don't really like doctors all that much. This one had a band-aid on his finger that looked like it had been there a week; fraying & dirty. He asked me about my meds but didn't know any of them when I told him. When I stood to leave he didn't move toward the door to see me out. I waited politely & then opened the door & let myself out.
Tuesday, August 23, 2011
Wednesday, August 10, 2011
Extreme recycling
Recycling at our place (with help from Dad) has really taken off. At our new home I've been amazed at what we can recycle. Back living in an apartment in The Big City we'd separate our waste from paper, plastics & glass & that seemed alright. But I've attained a whole new level of recycling now we've got a spot with a section. It's a level I like to call "extreme recycling". Yeah.
The bird feeder
Crusts & mouldy bread rates pretty highly with the birdlife at our place. They also get our apple & pear cores (and any other fruit bits), fat (skimmed from the top of the Chicken soup for the curiously sensitive soul). Cooked rice that has been sitting in the fridge for a day too long is very popular, as are the flax seed innards from my recently worn through heat pack.
The birds do very well out of this deal & I have to admit to supplementing their diet with seeds bought from the store as well as jam. But mostly they just eat what we have left over. They get a feed, I love watching the birds & so does my cat.
The worm farm
The worms eat pretty much anything the birds don't. Except meat & dairy. Which is fine because we don't eat those either, except for the chicken. The worms enjoy the vege trimmings & peelings. Vege that sat in the fridge a day too long they love. Egg shells are good in there too. Plus this is where any paper or cardboard that has already been recycled (e.g. egg cartons) go. The worms are going gangbusters, to my amazement. I honestly thought they'd all be dead inside eight weeks. The worm farm is in a shed out the back. I don't think they'd have coped with the snow the other week.
The worm farm itself is made from recycled bins that were left at the property when we moved in, with a bit of info on how to build a worm farm from ye olde internet.
I got a council subsidised "Bokashi Bin" as well, but the worms are developing quite an appetite & I might not be using it much longer.
After that we do the glass/plastics/paper/cardboard separating & what's left is not much.
We've also (thanks to my Dad), had some joy recycling some other bits & pieces.
So far our "new" house has gained:
The bird feeder
Crusts & mouldy bread rates pretty highly with the birdlife at our place. They also get our apple & pear cores (and any other fruit bits), fat (skimmed from the top of the Chicken soup for the curiously sensitive soul). Cooked rice that has been sitting in the fridge for a day too long is very popular, as are the flax seed innards from my recently worn through heat pack.
The birds do very well out of this deal & I have to admit to supplementing their diet with seeds bought from the store as well as jam. But mostly they just eat what we have left over. They get a feed, I love watching the birds & so does my cat.
The worm farm
The worms eat pretty much anything the birds don't. Except meat & dairy. Which is fine because we don't eat those either, except for the chicken. The worms enjoy the vege trimmings & peelings. Vege that sat in the fridge a day too long they love. Egg shells are good in there too. Plus this is where any paper or cardboard that has already been recycled (e.g. egg cartons) go. The worms are going gangbusters, to my amazement. I honestly thought they'd all be dead inside eight weeks. The worm farm is in a shed out the back. I don't think they'd have coped with the snow the other week.
The worm farm itself is made from recycled bins that were left at the property when we moved in, with a bit of info on how to build a worm farm from ye olde internet.
I got a council subsidised "Bokashi Bin" as well, but the worms are developing quite an appetite & I might not be using it much longer.
After that we do the glass/plastics/paper/cardboard separating & what's left is not much.
We've also (thanks to my Dad), had some joy recycling some other bits & pieces.
So far our "new" house has gained:
- 1 recycled rimu lounge floor
- 1 shower door, circa 1970s. It was in the family house when we moved in & it wasn't new then. It's now our shower door.
- 1 glass panel door, origin unknown (that is, Dad was asked to store it by someone who has never returned to collect it. Dad can't remember who that was). The door is not an exact fit for the doorway. Actually there's an inch gap at the bottom.
- 1 weather proofing strip. I can't remember how long Dad said this had been sitting upstairs at the shop. Maybe 10 years.
Friday, July 22, 2011
Precious things
I've never been one for stuff & clutter.
I like things in my home to have a practical purpose, otherwise they are just there to take up space, time & energy. They collect dust & create work.
No, I prefer the practical - everything has a use. It does something worthwhile. It contributes to my life in a meaningful way. It makes my life easier, more enjoyable.
Not for me the purely decorative, no, no, not at all. If I can't use it, I don't need it. Sentimental reasons are not enough to hang on to an object that is cluttering up a room.
As life goes on however, I am developing a greater tolerance for these kinds of items.
Now that I myself am a purely decorative object with no practical purpose that takes up space & creates work, I have some sort of empathy with similar objects in my home. Sure I might need taking off the shelf once in a while for a quick dust. But that isn't the sum of my value. I have less tangible attributes. Perhaps I don't make life easier in a practical way, but I make it more fun. Or better looking.
;o)
I like things in my home to have a practical purpose, otherwise they are just there to take up space, time & energy. They collect dust & create work.
No, I prefer the practical - everything has a use. It does something worthwhile. It contributes to my life in a meaningful way. It makes my life easier, more enjoyable.
Not for me the purely decorative, no, no, not at all. If I can't use it, I don't need it. Sentimental reasons are not enough to hang on to an object that is cluttering up a room.
As life goes on however, I am developing a greater tolerance for these kinds of items.
Now that I myself am a purely decorative object with no practical purpose that takes up space & creates work, I have some sort of empathy with similar objects in my home. Sure I might need taking off the shelf once in a while for a quick dust. But that isn't the sum of my value. I have less tangible attributes. Perhaps I don't make life easier in a practical way, but I make it more fun. Or better looking.
;o)
Thursday, July 7, 2011
Sweet nothings
Last night I said to hubby "If I were a car you would have taken me back to the dealer by now".
"No, not at all honey" he said reassuringly.
"If you were a car I would have pushed you over a bank".
"No, not at all honey" he said reassuringly.
"If you were a car I would have pushed you over a bank".
Tuesday, July 5, 2011
Chicken soup for the curiously sensitive soul
Ingredients
1 small organic chicken (whole for 2 or more, half for one person)
2 carrots
spinach
rice noodles
water
Method
First up, I'm going to say that if you can tolerate onions & garlic you should put them in. In fact use chicken breasts instead, chop them up & marinate them overnight in a whole lot of crushed garlic (trust me).
I can't so for this one we're going without. Get your big stock pot. If you don't have a pot big enough for this chicken you are already in trouble. You might be able to get around it by chopping the chicken into bits but I'm not promising anything.
Chop the spinach & carrot (and any other veges you can tolerate & want in here, but definitely not onions if you're onion intolerant) & chuck them in the pot. Put your chicken in there & top up the pot with water.
Simmer for, I don't know, maybe an hour, maybe a bit longer longer. This isn't a cooking show you know. I've got mine on & it's 90 mins until dinner time.
When all is cooked take the chook out of the pot - unless you started with chicken breasts done in garlic, in which case leave it in. Oh you are in for such a treat.
The chicken stock with the veges in it can go in the freezer for a while because you now have several days worth of really good tasting chicken to eat. No cooking for the next week - yeah!
Remember to act surprised every time you offer your cat a bit of chicken & he turns his nose up at it. But don't offer your cat chicken if you used onion &/or garlic, it's toxic to cats.
When you want to use the stock & vege, heat it up & prepare the rice noodles (you can use another type of noodles, the instant variety are pretty popular. We're sticking with rice, because of the whole gluten issue). Chuck them in, cook for a bit & you're all good.
1 small organic chicken (whole for 2 or more, half for one person)
2 carrots
spinach
rice noodles
water
Method
First up, I'm going to say that if you can tolerate onions & garlic you should put them in. In fact use chicken breasts instead, chop them up & marinate them overnight in a whole lot of crushed garlic (trust me).
I can't so for this one we're going without. Get your big stock pot. If you don't have a pot big enough for this chicken you are already in trouble. You might be able to get around it by chopping the chicken into bits but I'm not promising anything.
Chop the spinach & carrot (and any other veges you can tolerate & want in here, but definitely not onions if you're onion intolerant) & chuck them in the pot. Put your chicken in there & top up the pot with water.
Simmer for, I don't know, maybe an hour, maybe a bit longer longer. This isn't a cooking show you know. I've got mine on & it's 90 mins until dinner time.
When all is cooked take the chook out of the pot - unless you started with chicken breasts done in garlic, in which case leave it in. Oh you are in for such a treat.
The chicken stock with the veges in it can go in the freezer for a while because you now have several days worth of really good tasting chicken to eat. No cooking for the next week - yeah!
Remember to act surprised every time you offer your cat a bit of chicken & he turns his nose up at it. But don't offer your cat chicken if you used onion &/or garlic, it's toxic to cats.
When you want to use the stock & vege, heat it up & prepare the rice noodles (you can use another type of noodles, the instant variety are pretty popular. We're sticking with rice, because of the whole gluten issue). Chuck them in, cook for a bit & you're all good.
Monday, June 6, 2011
A chocolate guinea pig (I want to be)
Every couple of years a research article is published on the benefits of dark chocolate for people with ME/CFS. While I should mention that none of these people have been cured, nonetheless they report feeling better when eating chocolate when compared with sufferers eating something that has the same colour & consistency as chocolate, but which is not chocolate.
I know. Unbelievable.
Now I'm no scientician. But I applaud this medical research from laudable institutes such as Nestle, Mars, & Hull University (one of the world's top 500 universities). In fact I really want to know how I can get in on one of these studies. For purely scientific reasons you understand. I just want to give something back to the community. And if this is one way I can contribute to the development of medical science, then I am willing to donate my body for the cause.
In the meantime I am conducting a little bit of background research. Knowledge is power.
I know. Unbelievable.
Now I'm no scientician. But I applaud this medical research from laudable institutes such as Nestle, Mars, & Hull University (one of the world's top 500 universities). In fact I really want to know how I can get in on one of these studies. For purely scientific reasons you understand. I just want to give something back to the community. And if this is one way I can contribute to the development of medical science, then I am willing to donate my body for the cause.
In the meantime I am conducting a little bit of background research. Knowledge is power.
Tuesday, May 17, 2011
1st NZ report on implementing the UN Convention on the Rights of Persons with Disabilities
Over the end of 2010 submissions were called for New Zealand's report on implementing the UN Convention on the Rights of Persons with Disabilities.
In response submissions were made including requests for awareness raising, education for health professionals & the issues surrounding lack of access to health services for people with MCS in New Zealand.
The first report has just been released, and article eight, section 36 responds to the issue of lack of awareness surrounding the issue of awareness in disabilities such as multiple chemical sensitivity:
See link to full report
I am delighted to see that there has been acknowledgement of the lack of services available to people with MCS & in this first report a committment to raising awareness among health professionals.
In response submissions were made including requests for awareness raising, education for health professionals & the issues surrounding lack of access to health services for people with MCS in New Zealand.
The first report has just been released, and article eight, section 36 responds to the issue of lack of awareness surrounding the issue of awareness in disabilities such as multiple chemical sensitivity:
36. Awareness and understanding of different impairment types by government agencies, professionals and the public varies. Disabled people with uncommon impairments such as those arising from multiple chemical sensitivity syndrome report that there are few or no services available (to respond to severe reactions to chemicals) and health professionals lack knowledge about such conditions.
See link to full report
I am delighted to see that there has been acknowledgement of the lack of services available to people with MCS & in this first report a committment to raising awareness among health professionals.
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